About Us

Beyond Batten Disease Foundation was established to eradicate Batten disease by raising awareness and funds for research. Batten disease is a rare, fatal, neurodegenerative disorder that affects children. A treatment is now in sight and your participation in the event will support a campaign to get this medical breakthrough to clinical trials. beyondbatten.org

Louise H. Batz Patient Safety Foundation helps prevent medical errors by ensuring that patients and families have the knowledge they need to promote a safe hospital experience for their loved ones, and to support innovative advancements in patient safety. Our greatest hope is that families, patients, and caregivers will work together to improve safety in our hospitals. www.louisebatz.org